Pushing for Improvements
in Canada’s Organ Donation
and Transplantation System

On September 20, 2018, a Blood Health and Organ Transplantation supplement was published in Maclean's Magazine. It included an article about the improvements needed in Canada’s Organ Donation and Transplantation System. It also features Gwen Herrington’s perspective, a nurse and mother who speaks candidly about how her life has changed thanks to the kidney transplant she received.

Read the article.


Global News Report:

Calgary Woman Walks in Kidney March
to Honour Mother

Katherine Schneider walked in honour of her mother Sharalee in the ninth annual Kidney March. As Deb Matiekicka reports, the pair had planned to participate in the 3-day, 100-kilometre walk together. 250 Kidney Marchers took part in the event that raised over $940,000.

Watch now. 

 

Travel & Dialysis
Tips from Fellow Travelers - Part Three: Last Minute Tips

In the third and final installment of the series, get some last minute advice before you leave for your trip. Bon voyage!


Paul Kidston Recognized with
The Kidney Foundation of Canada's Highest Volunteer Honour

The Harold W. Ashenmil Award, considered the highest honour given to a volunteer by The Kidney Foundation of Canada, is granted to an individual who has rendered distinguished service and made noteworthy contributions to The Foundation’s mission and objectives.

Read more.

Dear All,

Welcome to the second in a series of weekly communications that will lead up to #WorldObesityDay on the 11th October 2018.

This year, our focus is on weight stigma.

We want to #EndWeightStigma by shining a spotlight on the stigmatising language and images used by the media, healthcare providers and society at large. 

 


Help us end weight stigma this #WorldObesityDay

Each week in the lead up to #WorldObesityDay we will share ideas on how you can engage with media, healthcare providers and other organisations to help #EndWeightStigma. We will also provide you with resources to support your activity on World Obesity Day. Plus, to help with inspiration, we’ll share what World Obesity and our members and supporters are doing on and around the day.

We’ll be sharing all the tools and resources you need over the coming weeks. This week we include:
• More information on next week’s webinar
• How you can help #EndWeightStigma with patient stories (extended deadline 21 September) and the most stigmatising phrases used in your country
• An outline of the Patient Summit being held on 10-11 October
• Background on our aims and focus for World Obesity Day 2018

More information and resources for World Obesity Day 2018 will also be uploaded to: www.obesityday.worldobesity.org .

 


World Obesity Day Webinar - next week

On 19th September 2018 at 4pm BST we’re hosting a webinar on World Obesity Day 2018, focusing on the theme of 'Weight Stigma'. The webinar will include a summary of the campaign and how to get involved. Johanna Ralston will chair the webinar with presentations from various members and advocates plus guest speaker Stuart Flint talking on 'Weight Stigma and the Media'. If you are able to join us, please register by following this link.

 


Extended deadline for case studies – Friday 21st September

Do you know anyone who has experienced obesity stigma? If so, we want to hear from you. We’re on the hunt for compelling real-life stories and experiences that clearly demonstrate the impact of stigma.

 Direct experiences and personal stories will help the media and healthcare providers realise the consequences of stigma and encourage them to change attitudes towards people with obesity.

Thank you to everyone who has already been in touch with potential leads.

Please complete the short survey here to get involved

 


Patient Summit: 10-11 October 2018

To mark World Obesity Day 2018 we’re hosting a Patient Summit that will bring together patients, experts and other stakeholders from across the globe to share knowledge, explore topical themes and develop ideas and practical solutions to end the global obesity crisis.

This will include facilitated discussions about how the obesity landscape has changed and training sessions to empower and engage people living with obesity. Look out for further information on the Summit plus future events for patients in our newsletters and website.

 


What is World Obesity Day? 

World Obesity Day was launched in 2015 as an annual campaign to stimulate and support practical solutions to help people achieve and maintain a healthy weight, and to reverse the global obesity crisis. 

The number of adults living with obesity continues to rise. On current trends, 2.7billion adults worldwide will live with obesity by 2025, of which 177 million adults will be in need of treatment as a result of severe obesity. 

This #WorldObesityDay we are asking you to help us #EndWeightStigma by calling out examples of stigma and prejudice in the media and online.

 


Why focus on stigma? 

Weight stigma is pervasive in countries around the world – and we all have a role to play to help end it. Here’s why:

  • Stigmatising obesity undermines people’s health and makes it harder to seek support
  • Negative images and language reinforce stigma around obesity
  • Modern environments encourage and promote unhealthy lifestyles. Obesity is not about individual blame but shared responsibility in society

A positive, supportive narrative between clinicians and their patients will increase the effectiveness of care

 


How can we end stigma?

This #WorldObesityDay we’re focusing on four calls to action:

  1. to help end weight stigma we need… Media to abandon the use of negative images and language about obesity.
  2. to help end weight stigma we need… Health care providers to acknowledge the environmental factors that cause obesity, which will improve support and efficacy during diagnosis and treatment. 
  3. to help end weight stigma we need… Greater awareness that there are multiple sources of weight stigma and greater understanding of the steps to avoid it such as at work or at school.

to help end weight stigma we need… Government action to improve the environments we live in, rather than focus on individual responsibility and blame.

 


What next?

In the coming weeks there will be more information on our plans for #WorldObesityDay and how you can get involved.

This includes plans for social media, a template press release and template letters to media.

 

Any questions?

If you have any questions, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it.

You can tweet us @WorldObesity and use #WorldObesityDay or #EndWeightStigma

All information and resources will be added to our World Obesity Day website as it becomes available. 

 

Thank you for helping us #EndWeightStigma.

 

The Kidney Foundation on the Hill, The Medal for Research Excellence, and more...

 

The Kidney Foundation on the Hill

On May 9, The Kidney Foundation of Canada was invited to appear before the House of Commons’ Standing Committee on Health (HESA) in view of the study on the role of the federal government in improving access to organ donation. National Executive Director Elizabeth Myles was joined by a volunteer who has a family member with kidney failure on dialysis. Additionally, her husband and her aunt were a deceased organ donors. Listen to the hearing or read the full transcript.

 

2018 Medal for Research Excellence

The Kidney Foundation of Canada is pleased to announce that Dr. Peter Nickerson is the recipient of the 2018 Medal for Research Excellence. Dr. Nickerson is recognized as a leader in transplantation medicine both in Canada, and around the world. His innovative research and contributions to health policy are helping to improve access and quality of organ transplantation in Canada.

 

Take a Giant Step

Our Kidney Walk season has already started, kicking off in Saskatchewan, Alberta and Quebec. Participants took a giant step forward to raise funds and awareness, while building the kidney community. Every year, some 15,000 volunteers and participants gather at Kidney Walks in communities throughout the country. Join us in this cornerstone event to help support innovative and ground-breaking research projects and to help the Foundation offer crucial programs and services to the thousands of people impacted by kidney disease. Every step is a giant leap forward in the fight against kidney disease.

TANKER Foundation’s World Kidney Day 2018 activities was a day of awareness, activity
and fun for more than 250 patients with kidney disease and the staff .

World Kidney Day Steering Committee said the focus this year is on Women’s Health, stating chronic
kidney disease affects approximately 195 million women worldwide and is the 8th leading
cause of death in women.

Read en see more in our Newsletter

THANK YOU FOR YOUR PARTICIPATION! 

This year World Kidney Day (WKD) was celebrated on March 8.
In our 13th campaign, we highlighted the unique issues and risks that women face for their kidney health.

Together with the Taskforce on Women and NCDs, we wrote "Kidney Disease and Women - A Call to Action", a joint statement aimed at highlighting current evidence and key challenges in the areas of kidney disease and maternal and child health, access to kidney care and prevention of kidney disease, and setting out concrete policy recommendations to address these issues.

We would like to thank our partner and all the organizations and individuals that have helped us disseminate this message.

 

We are very grateful to all the dedicated individualshospitalsorganizationssponsors and groups who held WKD events, supported and participated in the campaign.

Thanks to your incredible dedication and enthusiasm, WKD has reached new heights: more than 1000 events were organized all over the world and more than 2 billion people were reached!

If you want to learn more about all the activities carried out around the globe for WKD 2017, take a look at our photostream. You can still send us your pictures and we will add them to the gallery.

If you have not added your WKD event to the map yet, it is not too late! Register it here: http://www2.theisn.org/e/463452/worldwide-events-add-an-event-/cp9pxk/216894194 We are still collecting results and we are curious to know more about your experience!

The success of World Kidney Day relies on your efforts, inspiration and commitment.

World Kidney Day would not be possible without you and your energy.

THANK YOU ALL!

The World Kidney Day Team

Challenges of paediatric acute kidney injury in low-income and middle-income countries

Acute kidney injury (AKI) is an increasingly significant yet underdiagnosed problem in paediatric care, with potential long-term risks of chronic kidney disease in adulthood. In too many low-income and middle-income countries (LMICs), AKI is a death sentence, with scarcities of resources and trained personnel precluding provision of effective care. Efforts to address this inequity will require worldwide determination and effort.

Read more on: http://www.thelancet.com/campaigns/kidney/updates/challenges-of-paediatric-acute-kidney-injury

Sustainable, affordable, quality dialysis for universal kidney care

End-stage kidney failure (ESKF), a condition in which kidney function falls to critical levels that threaten survival and quality of life, is becoming an increasing global, public health and financial burden and is considered a national priority in the majority of low-income countries (LIC) and lower-middle-income countries (LMIC)1,2. Whilst dialysis is lifesaving to patients with ESKF, only about one-half to three-quarters of all individuals with ESKF who require kidney replacement therapy actually receive it3.

Read more on: http://www.thelancet.com/campaigns/kidney/updates/sustainable-dialysis

Congratulations to Dr Ayla San from Turkey who received the ISN Pioneer award for eastern and central Europe in recognition of her outstanding and sustained contributions in establishing and developing nephrology.

ISN Programs Chair John Feehally and Eastern and Central Europe Regional Board Chair Rumeyza Kazancioğlu were honored to present Dr San with the ISN Pioneer award during the opening ceremony of the 13th Balkan Cities Association of Nephrology, Dialysis, Transplantation and Artificial Organs (BANTAO) congress, which was held last week in Sarajevo, Bosnia and Herzegovina.

Read more on: https://www.theisn.org/news/item/3197-isn-pioneer-award-goes-to-turkey-s-nephrology-innovator

Role of kidney health advocacy organizations in reducing the global burden of kidney disease

Whereas the global burden of kidney disease is substantial,1 the actual burden of kidney disorders in low-middle income countries (LMIC) may be even higher. National or regional registries related to the status of kidney health are lacking in many of these countries.

Read more on: http://www.thelancet.com/campaigns/kidney/updates/role-of-kidney-health-advocacy-organizations

This WorldObesityDay we are calling on all governments, health service providers, insurers and philanthropic organisations to prioritise investment in tackling obesity. This means investment in obesity treatment services, early intervention and prevention.

Read the newsletter: http://ifkf.org/WorldObesityDay/11Ocober2017-WorldObesityDay.htm

 

Here the program of the 24th Budapest Nephrology School organized by the Hungarian Kidney Foundation coming 26-31 August 2017.

Read: Program of the 24th Budapest Nephrology School


For further information please see: http://bns-hungary.hu/

Since World Kidney Day 2016, The Lancet Kidney Campaign has published monthly updates on issues relating to renal care, attracting the attention of global policy makers. We hope you enjoy reading them and will share these latest reads. One of the latest articles focuses on innovation and research discussed at the 54th European Renal Association — European Dialysis and Transplant Association (ERA-EDTA) Congress in Madrid. The second update considers recent news in India regarding the Union Government's proposed a plan to fund dialysis treatment.

All full reading list and related content is also available to browse. See: http://www.thelancet.com/campaigns/kidney/updates

The theme of World Diabetes Day (WDD) 2017 - 14 November - is Women and Diabetes, with the slogan

OUR RIGHT TO A HEALTHY FUTURE

Led by the International Diabetes Federation (IDF), the campaign will promote the importance of affordable and equitable access for all women at risk for or living with diabetes to the essential diabetes medicines and technologies, self-management education and information they require to achieve optimal diabetes outcomes and strengthen their capacity to prevent type 2 diabetes.

Click HERE to read the more

How to set up PD centres: the Chinese perspective

Xueqing Yu
Department of Nephrology, The First Affiliated Hospital, Sun Yat-sen University, Guangzhou, China

As a developing country with a population of 1.3 billion, China is resource-limited regarding healthcare, particularly in rural and remote areas. The growing prevalence of end-stage kidney disease (ESKD) nationwide in such a context highlights the need for peritoneal dialysis (PD) to promote this home-based and economical therapy [1].

Read more on: http://www.thelancet.com/campaigns/kidney/updates/how-to-set-up-pd-centres-the-chinese-perspective

The 2017 European Kidney Forum took place on the 11th of April in Brussels, hosted by the MEP Group for Kidney Health. This year’s edition focused on the second cluster of EKHA recommendations on sustainable kidney care: Patient Choice of Treatment.

Click here for the European Kidney Forum 2017 outcome report.

A short summary video of the event is available on the EKHA

  • YouTube channel here
  • On the EKHA website here

 

13th May 2017, the CKDu core group meeting was organised by Tamilnad Kidney Research Foundation (TANKER) Foundation with technical support from Indian Council of Medical Research. The main discussion was on coming to a consensus about the definition of CKDu and the priority areas for research to take forward the cause of CKDu.

Read more: http://ifkf.org/meetings/regional-meetings.html

 

UPDATE on CKDu

Unravelling the clues behind a mysterious form of kidney disease

Doctors and researchers are struggling to understand the growing incidence and, so far unexplained, causes of chronic kidney disease in certain agricultural populations of Sri Lanka, South India and Latin America. Read this latest Lancet Kidney Campaign update.

Read more on: http://www.thelancet.com/campaigns/kidney/updates/unraveling-clues-behind-a-mysterious-form-of-kidney-disease 

 


 

UPDATE on Mexico Global Kidney Policy Forum

Conclusions from the first ISN Global Kidney Policy Forum

Read this latest Lancet Kidney Update that recounts the first ISN Global Kidney Policy Forum held on April 21, 2017. The resulting Conclusions of Mexico City are a 12-point set of measurable actions designed to curb the burden of kidney disease worldwide, with specific focus on Latin America.

Read more on: http://www.thelancet.com/campaigns/kidney/updates/conclusions-of-mexico-city

 

The case of neonatal acute kidney injury: Don't forget the babies!

 
David J. Askenazi
Department of Pediatrics, Division of Pediatric Nephrology, University of Alabama at Birmingham, Birmingham, USA
 
Jennifer R. Charlton
University of Virginia Children’s Hospital, Charlottesville, Virginia, USA
 
Ronnie Guillet
MD, Golisano Children’s Hospital, University of Rochester, Rochester, New York, USA

Extraordinary advances in neonatal care have markedly reduced the mortality of infants hospitalized in neonatal intensive care units (NICU). In the last few years, more publications, presentations and workshops have focused on kidney health in the NICU and its potential long-term renal health implications. Multiple single center reports suggest that neonatal acute kidney injury (AKI) is common and portends poor outcomes. These data are consistent with publications in adults and children suggesting that critically-ill patients do not just die from AKI, rather, AKI and fluid overload directly impact outcomes.1 Neonatal AKI is not only associated with increased mortality and length of stay,2 there is expanding evidence that NICU graduates are at risk of chronic kidney disease (CKD).

CKD affects millions of children and adults across the world and, like many adulthood diseases, may have its origins in early life. NICU graduates are at risk of developing CKD. Yet, the magnitude, underlying risk factors, and pathophysiology of the problem have not been fully elucidated. Existing studies suggest CKD in NICU survivors may be due to antenatal factors and postnatal exposures. Because glomerulogenesis continues into 34-36 weeks of post-conception, premature delivery disrupts nephrogenesis, leaving premature infants ‘primed’ for AKI and CKD.3 Previously, it was assumed that after an episode of AKI the kidney would recover kidney function completely. However, recent data from animals, children and adults with AKI suggest that survivors are indeed at risk of developing CKD.4 The full impact of AKI events during the first weeks of life on long-term kidney and health outcomes is not yet known.

Given the current state of AKI knowledge and the unique conditions of the neonate in the ICU, multiple questions about neonatal kidney health remain unanswered. Which neonates are at most risk of AKI and CKD? How do we improve our ability to recognize neonatal AKI earlier in the disease process? What clinical risk factors, nutritional, genetic, and environmental factors determine kidney health and/or disease? How do we recognize and prevent fluid overload in critically-ill neonates? What interventions can be used to prevent AKI and CKD and the consequences of failed organ function? What is the role of renal support devices in the care of critically-ill neonates with multi-organ failure? How is neonatal AKI different in those born in developed vs underdeveloped countries?

To answer these questions, several exciting initiatives are underway which promise to improve our understanding of neonatal AKI and enhance our ability to care for neonates with AKI. Groups such as the Neonatal Kidney Collaborative (neonatologists and pediatric nephrologists dedicated to improving neonatal kidney health) have formed and are conducting research on large international multi-center cohort studies. The NKC recently completed a 24-center multi-institutional study called Assessment of Worldwide Acute Kidney Epidemiology in Neonates (AWAKEN)5. Data from over 2000 sick neonates (born in 4 countries, across 24 centers) will allow investigators to understand the magnitude of the problem and have ample power to test whether AKI indeed portends poor outcomes after controlling for potential confounding variables. New devices, specifically designed to provide renal support therapy for neonates, have been developed and are currently being tested. These devices promise to enhance the ability to provide safe and reliable care to even the smallest infants. These advances will help improve the clinician’s ability to prevent, treat, support and prognosticate outcomes in vulnerable neonates at risk of kidney disease.

 

  1. Kaddourah A, Basu RK, Bagshaw SM, Goldstein SL, AWARE Investigators. Epidemiology of Acute Kidney Injury in Critically Ill Children and Young Adults. N.Engl.J.Med. 2017;376:11-20

  2. Selewski DT, Charlton JR, Jetton JG, Guillet R, Mhanna MJ, Askenazi DJ, et al. Neonatal Acute Kidney Injury. Pediatrics 2015;136:e463-73

  3. Carmody JB, Charlton JR. Short-term gestation, long-term risk: prematurity and chronic kidney disease. Pediatrics 2013;131:1168-79

  4. Chawla LS, Kimmel PL. Acute kidney injury and chronic kidney disease: an integrated clinical syndrome. Kidney Int. 2012;82:516-24

  5. Jetton JG, Guillet R, Askenazi DJ, Dill L, Jacobs J, Kent AL, et al. Assessment of Worldwide Acute Kidney Injury Epidemiology in Neonates: Design of a Retrospective Cohort Study. Front.Pediatr. 2016;4:6

 

Source: http://thelancet.com/campaigns/kidney/updates/case-of-neonatal-acute-kidney-injury 

Research released today in light of World Kidney Day 2017 has revealed that that 55% of people in the UK with the most common risk factors for kidney disease (vascular disease, high blood pressure or diabetes) said they do not consider themselves to be at risk of kidney disease,

Read more on kidneyresearchuk.org news page: New survey finds 55% of people in UK at greatest risk of kidney disease are unaware of the risk they face.

 ‘Kidney’ was the word on thousands of lips on 9 March this year. Fundraisers and volunteers all around the UK took to the streets, hospitals and the airwaves to raise awareness of kidney disease and drum up support for the kidney cause as part of World Kidney Day. 

Read more on kidneyresearchuk.org news page: Creating a World Kidney Day wow!