IFKF

These useful health related links are provided for your convenience. Although the quality is checked, IFKF takes no responsibility for content or reliability. Listing a website should not be taken as our endorsement. Other sites linking to www.ifkf.org may have done so without our knowledge or permission.

CKD EARLY DETECTION PROGRAMS

International Kidney Early Evaluation Program (IKEAJ) Japan 
Kidney International 2014: Taming the chronic kidney disease epidemic: a global view of surveillance efforts

CLINICAL PRACTICE GUIDELINES, STUDY GROUPS, CKD PUBLICATIONS

KHA-CARI Guidelines (Caring for Australians with Renal Impairment) 
Dialysis Outcomes and Practice Patterns Study - DOPPS 
European Best Practice Guidelines 
Kidney Disease Outcomes Quality Initiative Guidelines KDOQI  
SHOULD BE  https://www.kidney.org/professionals/guidelines/guidelines_commentaries
Kidney Disease: Improving Global Outcomes KDIGO
National Institute of Clinical Excellence (NICE) Guidelines UK
Renal Association Guidelines (UK)
SeeKD Program- IFKF Early Detection Program  
IS THIS STILL CURRENT – ITS ON THE IFKF WEBSITE

EDUCATION - HEALTH PROFESSIONALS

Chronic Kidney Disease - A Guide for Primary Care UK
CKD Management in General Practice booklet - Kidney Health Australia 
A MINOR CHANGE http://kidney.org.au/health-professionals/support/kha-cari-guidelines
British Renal Society UK
Cardiovascular Medicine
European Association of Urology
Food and Drug Administration (USA)
Kidney Check Australia Taskforce - Kidney Health Australia 
NOW FOUND UNDER Primary Care Education – Kidney Health Australia http://kidney.org.au/health-professionals/detect/education
National Kidney Disease Education Program (NKDEP NHI) USA
The Obesity Society (USA)
National Library of Medicine (USA)
World Obesity
Working Group on Renal Rehabilitation and Exercise Physiology NOT CURRENT

EDUCATION - FOR PATIENTS

Class education (UK)
DaVita USA - wide range of patient education resources
Drugwatch USA
Life Options Rehabilitation Program USA
Nephron Information Center
Online health calculators Kidney disease tool NHS UK 
Oxalosis and Hyperoxaluria Foundation 
Kidney Learning System - National Kidney Foundation 
USA SHOULD BE http://www.kidneymd.org/kidney-education-research/kidney-learning-systems/
Wikikidney - monitored by health professionals DELETE - NOT CURRENT ANY MORE

HYPERTENSION

International Society of Hypertension
Hypertension Canada 
SHOULD BE https://www.hypertension.ca/en/
Stroke & Blood Pressure Canada 
World Action on Salt and Health (WASH)

INTERNATIONAL HEALTH CENTRES

Center for Disease Control and Prevention (CDC)
National Institute of Health (NIH)
World Health Organisation (WHO) 
NOT LINKING – NEW LINK  http://www.who.int/en/

JOURNALS & PUBLISHERS

American Journal of Kidney Disease 
British Journal of Urology 
NOT LINKING http://www.bjuinternational.com/
Hypertension, Dialysis and Clinical Nephrology 
Journal of Iranian Kidney Disease
Journal of Renal Nutrition
Kidney International 
Kidney Research & Clinical Practice (KRCP)
MEDWORLD - Comprehensive list of Medical Journals
Nature Clinical Practice Journals 
NDT-Educational for kidney and blood pressure related disorders (EDTA)
Nephrology Dialysis Transplantation
Nephrology News and Issues
Peritoneal Dialysis International  
Saudi Journal of Kidney Diseases & Transplantation - PUBMED indexed

KIDNEY CANCER

International Kidney Cancer Coalition
Kidney Cancer Australia  
SHOULD BE http://kidney.org.au/your-kidneys/support/kidney-cancer
Kidney Cancer Association USA 
Kidney Cancer Canada
Kidney Cancer UK  
THIS IS NOW http://www.kcuk.org.uk/

KIDNEY PATIENT ASSOCIATIONS

American Association of Kidney Patients 
American Kidney Fund 
European Kidney Patients Federation  
SHOULD now BE http://www.ekpf.eu/
European Kidney Health Alliance  
SHOULD BE AMENDED …. DELETED WWW. TO http://ekha.eu/
European Transplant and Dialysis Sports Federation
National Kidney Federation UK
National Kidney Foundation USA 
AMEND TO www.kidney.org
World European Transplant Games Federation - A Manifesto

KIDNEY PATIENT CHARTERS - PRINCIPLES OF OPTIMAL CARE

IFKF Patient Advocacy Committee developed a set of twenty rights for individuals with end stage renal failure (ESRF) approved by our Council in these categories: (i) need of treatment and choice of patients (ii) treatment of ESRF by haemodialysis (iii) treatment of ESRF by peritoneal dialysis (iv) renal transplantation. To be reviewed in 2015.  HAS THIS BEEN REVIEWED??????
Australia - Principles of optimal care of Australians with CKD - 
Kidney Health Australia UPDATE TO http://kidney.org.au/advocacy/policy/consumer-committees
Canada - Principles of Care for Canadians with CKD - Kidney Foundation of Canada
World Transplant Games Federation – Manifesto    
SHOULD NOW BE hhttp://wtgf.org/wtgf-manifesto/

KIDNEY PATIENT MANUALS - SELF-MANAGEMENT OF CKD

All about Chronic Kidney Disease - DaVita USA
Kidney Beginnings: A Patients Guide to Living with Reduced Kidney Function
Living with Kidney Failure - Kidney Health Australia  
CHANGE TO MY KIDNEYS MY HEALTH - KIDNEY HEALTH AUSTRALIA http://kidney.org.au/about-us/resources-library/kidney-health-publications
BEST DIRECT TO KHA  HEALTH PUBLICATIONS PAGE – as we have My Kidneys My Health AND a new Indigenous range, with a new Kidney Cancer one coming soon.
Kidney Learning System NKF (USA) Comprehensive education on CKD for the expert patient SHOULD BE http://www.kidneymd.org/kidney-education-research/kidney-learning-systems/ OTHER LINK DOESN’T CONNECT NOW
Treatment methods for kidney failure in children NKUDIC USA
Renal Patient View UK – patients can access their own results and health profile

PROFESSIONAL SOCIETIES

American Society of Nephrology
Brazilian Society of Nephrology
British Renal Society - recommended
Canadian Society of Nephrology
CardioRenal Forum (UK) 
European Renal Association-European Dialysis and Transplant Assoc
European Dialysis & Transplant Nurses Association-European Renal Care Assoc 
European Kidney Health Alliance 
TO CONNECT MUST BE http://ekha.eu/  WITH NO WWW. IN IT
European Society for Paediatric Urology
International Society of Nephrology 
ISN UPDATING THEIR SITE PLATFORM – DON’T THINK URL WILL CHANGE BUT CHECK AFTER 17 OCT
International Federation of Diabetes 
International Society of Peritoneal Dialysis
International Society of Renal Nutrition and Metabolism
Kidney and Urology Foundation of America 
National Association of Nephrology Technicians/Technologists 
WRONG LINK HERE   http://www.renaltech.net
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
 LINK INCORRECT
National Renal Administrators Association 
Renal Physicians Association
Renal Association UK
System Biology towards Novel CKD diagnosis and treatment 
=DELETE LINK NOT VALID NOW

RENAL REGISTRIES

Australia & New Zealand Dialysis & Transplant Registry
Austrian Registry
Belgian Registry 
Brazilian Kidney Transplant & Dialysis Registry 
Canadian Registry 
Dutch Renal Registry 
European Renal Registry
Eurotransplant
French Peritoneal Dialysis Registry
Norwegian Registry 
Scottish Registry 
Spanish Registry 
UK Renal Registry
UK Transplant 
United States Renal Data System

TRANSPLANTATION

Association of ORGAN Procurement Organization 
British Transplant Society
NHS UK - Organ Donation
North American Transplant Coordinators Organisation (NATCO)
Publications of interest
1. The declaration of Istanbul on organ trafficking and transplant tourism 
2. How can we achieve global equity in provision of renal replacement therapy?

TRAVEL ON DIALYSIS

Australian Dialysis Unit Guide - private/public dialysis units, by State  SHOULD BE http://kidney.org.au/your-kidneys/support/dialysis/dialysis-unit-guide
Baxter Global 
CHANGE TO http://www.baxterhealthcare.com.au/patients_and_caregivers/areas_of_expertise/renal/treatment_options.html
Dialysis at Sea
Dialysis Escape Line: Australia
Fresenius Medical Care - USA dialysis units  
SHOULD BE http://fmcna.com/
Global Holiday Dialysis Facilities
Holiday Dialysis Dr Berger: pre-qualified dialysis-clinics through Europe  
ENTRY ERROR CORRECT TO http://www.dialysistravel.com/
Holiday Dialysis International - Fresenius managed cruise and travel  
BEST TO LINK TO https://www.nephrocare.com/dialysis-centres.html
National Kidney Foundation UK - Holiday Pages

WORLD HEALTH EVENTS

World Kidney Day Thursday 10 March 2016 (2nd Thursday March annually) DELETE DATE AND YEAR TO AVOID UPDATE MISMATCH
World Diabetes Day (November 14 annually)                            
2014-2016 theme: Healthy Living & Diabetes DELETE THESE WORDS
World Hypertension Day - International Society of Hypertension (17 May annually)
World Salt Awareness Week (February annually)
21stWorld Transplant Games - 23 to 30 August 2015 
REMOVE TO AVOID UPDATE AND OUT OF DATE ENTRY as listed above

Updated October 2016

 


Additional information